Exploring the Experience of Stuttering Management and Treatment Adherence in Adults Who Stutter

Document Type : Qualitative Review

Authors
1 MSc Student, Department of Rehabilitation Management, School of Rehabilitation Sciences, Iran University of Medical Sciences, Tehran, Iran
2 PhD, School of Rehabilitation Sciences AND Rehabilitation Research Center, Iran University of Medical Sciences, Tehran, Iran
3 PhD, Department of Speech Therapy, School of Rehabilitation Sciences AND Rehabilitation Research Center, Iran University of Medical Sciences, Tehran, Iran
4 Assistant Professor, Department of Rehabilitation Management, School of Rehabilitation Sciences, Iran University of Medical Sciences, Tehran, Iran
10.48305/jrrs.2026.46487.1154
Abstract
Introduction: Stuttering, as a speech fluency disorder, can profoundly affect quality of life (QoL), social communication, and mental health in adults. Effective stuttering management and treatment adherence are considered key factors in the success of rehabilitation programs for individuals who stutter. This study aimed to explore the experience of stuttering management and treatment adherence in adults who stutter.
Materials and Methods: This qualitative study employed conventional content analysis. Fifteen adults who stutter, aged 18 to 62 years, with a stuttering history of at least 6 months, were purposively recruited using maximum variation sampling. Data were collected through semi-structured, in-depth interviews and continued until theoretical saturation was reached. Conventional qualitative content analysis was employed for data analysis.
Results: Data analysis yielded six categories: self-concept reconstruction and emotional management, behavioral strategies, supportive factors, treatment motivation, continuity challenges, and therapeutic relationship quality. Successful stuttering management results from the interaction between reconstructed self-concept, effective behaviors, and environmental support. Treatment adherence, beyond techniques, depends on the quality of the therapeutic relationship, structural flexibility, and attention to psychosocial barriers.
Conclusion: Stuttering management and treatment adherence among adults who stutter are multidimensional phenomena that depend on individual, social, and therapeutic factors. Integrating these lived experiences into the design of rehabilitation programs can improve treatment adherence and QoL in this population.
Keywords
Subjects

References
1.     Yan X, Lei Y, Pan Y. Diving Deep Into the Relationship Between Speech Fluency and Second Language Proficiency:
A Meta-Analysis. Language Learning. John Wiley and Sons Inc, 2025. p. 1051-90.
2.     Zohre, Safari Hafshejani ; Hassan K. A review of effective treatments for adult stuttering. Jundishapur Scientific Medical Journal. 2019; 18(6-Serial Number 123):559-70.
3.     Weismer G, Brown DK. Introduction to communication sciences and disorders: the scientific basis of clinical practice. Vol. 1. Plural publishing; 2019.
4.     Franke M, Hoole P, Falk S. Temporal organization of syllables in paced and unpaced speech in children and adolescents who stutter. J Fluency Disord. 2023; 76.
5.     Logan KJ. Fluency disorders: Stuttering, cluttering, and related fluency problems. Vol. 1. Plural Publishing; 2020.
6.     Chang SE, Below JE, Chow HM, Guenther FH, Hampton Wray AM, Jackson ES, et al. Stuttering: Our Current Knowledge, Research Opportunities, and Ways to Address Critical Gaps. Neurobiology of Language. 2025; 6.
7.     Ilkhani Z, Shafiee B, Jafari N, Dehkordi SH. Effectiveness of the Westmead therapeutic method on preschool children with stuttering. Koomesh. 2020; 22(1): 138-44.
8.     S. Venkatesan. From diagnosis to treatment and evaluation: A narrative review of stuttering assessment tools. World Journal of Advanced Research and Reviews. 2025; 25(3): 214-27.
9.     Penman A, Hill AE, Hewat S, Scarinci N. Speech–language pathology students’ perceptions of simulation-based learning experiences in stuttering. Int J Lang Commun Disord. 2021; 56(6): 1132-46.
10.  Tüysüz S, Çevi̇k D, BAŞARAN FI. A Lifelong Journey with Stuttering: Experiences of Adults Who Stutter in Türkiye.
J Fluency Disord. 2026; 106218.
11.  Swift MC, Depasquale M, Chen J. Cognitive processing biases of social anxiety in adults who do and do not stutter.
J Commun Disord. 2024; 112.
12.  Alatawi M, Good J. Between therapy and reality: A lived-experience analysis of the priorities, progress, and barriers in stuttering management. J Fluency Disord. 2025; 85.
13.  Jokar AHR, Bluhm R. Neuroethical Evaluation of Neuromodulation for Stuttering: Implications for Agency, Identity, Consent, and Social Meaning. J Fluency Disord. 2026; 88: 106213.
14.  Hart AK, Breen LJ, Hennessey NW, Beilby JM. Evaluation of an integrated fluency and acceptance and commitment therapy intervention for adolescents and adults who stutter. Journal of Speech, Language, and Hearing Research. 2024; 67(4): 1003-19.
15.  Young MM, Byrd CT, Richardson EM. An interpretative phenomenological analysis of voluntary stuttering experiences of adults who stutter. J Commun Disord. 2025; 118: 106580.
16.  Sisskin V, Brow N, Goldstein B, Goldstein-Schuff C, Shaw K, Wertz J. Avoidance Reduction Therapy for Stuttering: Case Spotlights Through an ARTS Lens. Perspect ASHA Spec Interest Groups. 2026; 11(2): 340-55.
17.  Moazeni A, Shamsaee MM, Nakhshab M. What Factors Contribute to the Motivation of Adults Who Stutter to Continue Their Treatment? A Qualitative Study. Int J Lang Commun Disord. 2025; 60(5): e70102.
18.  Quinn A, Connery A. Consensus on the components of therapeutic alliance in stuttering intervention: An e-Delphi study with speech and language therapists. Advances in Communication and Swallowing. 2024; 27(2):115-30.
19.  Singh P. Medication adherence: Adjunct to patient outcomes. Journal of the Practice of Cardiovascular Sciences. 2017; 3(1): 8.
20.  Millard SK, Murphy S, Barton G, Rixon L, Shepstone L, Sims E, et al. Palin Stuttering Therapy for School aged Children and usual treatment: A randomised controlled trial feasibility study. J Fluency Disord. 2025; 84: 106114.
21.  Achterbosch M, Aksoy N, Obeng GD, Ameyaw D, Ágh T, Van Boven JF. Clinical and economic consequences of medication nonadherence: a review of systematic reviews. Frontiers in pharmacology. 2025; 16: 1570359.
22.  Yfantopoulos J, Protopapa M, Chantzaras A, Yfantopoulos P. Doctors’ views and strategies to improve patients’ adherence to medication. Hormones. 2021; 20(3): 603-11.
23.  Liu Y, Zhang C, Guo M, Zheng Y, Jia M, Yang J, et al. Influencing factors for medication compliance in patients with comorbidities of chronic diseases: a meta-analysis. J Prev Med (Wilmington). 2024; 790–5.
24.  Altamimi AF, Alqahtani ZA, Almughaiseeb FA, Alshiha KA, Alaryni A, Alotaibi A. The attitude and prevalence of patient noncompliance toward chronic disease medications in Saudi Arabia. J Family Med Prim Care. 2021; 10(8): 3064-70.
25.  Wilson TE, Hennessy EA, Falzon L, Boyd R, Kronish IM, Birk JL. Effectiveness of interventions targeting self-regulation to improve adherence to chronic disease medications: a meta-review of meta-analyses. Health Psychol Rev. 2020; 14(1): 66-85.
26.  Abdi K, Arab M, Rashidian A, Kamali M, Khankeh HR, Khalajabadi Farahani F. Exploring Barriers of the Health System to Rehabilitation Services for People with Disabilities in Iran: A Qualitative Study. Electron Physician. 2015; 7(7): 1476-85.
27.  Graneheim UH, Lindgren BM, Lundman B. Methodological challenges in qualitative content analysis: A discussion paper. Nurse Educ Today. 2017; 56: 29-34.
28.  Enworo OC. Application of Guba and Lincoln’s parallel criteria to assess trustworthiness of qualitative research on indigenous social protection systems. Qualitative Research Journal. 2023; 23(4): 372-84.
29.  Rogers CR. A theory of therapy, personality, and interpersonal relationships: As developed in the client-centered framework. New York: McGraw-Hill; 1959.
30.  Gerlach H, Chaudoir SR, Zebrowski PM. Relationships between stigma-identity constructs and psychological health outcomes among adults who stutter. J Fluency Disord. 2021; 70.
31.  Dean L, Medina AM. Stigma and the Hispanic stuttering experience: A qualitative study. Journal of Communication Disorders. 2021; 89: 106056.
32.  Medina AM, Perez G. Feelings and the acceptance spectrum in adult stuttering: A large-scale qualitative study. J Interact Res Commun Disord. 2022; 13(2): 244-68.
33.  Shojaie A, Mahmoudi H. The analysis of the concept of adherence to treatment in individuals with heart failure. Cardiovascular Nursing Journal. 2021; 10(1): 110-9.
34.  Sadeghi Firouzabadi A, Ansari Shahidi M, Tajeri B, Moradmanesh F. Prediction of treatment adherence based on personality traits and motivation in patients with high blood pressure. Rooyesh-e-Ravanshenasi. 1404; 14(6): 111-20.
35.  Abiz M, Robabi H, Salar A, Saeedinezhad F. The Effect of Self-Care Education on the Quality of Life in Patients with Pulmonary Tuberculosis. Med Surg Nurs J. 2020; 9(2): e108877.
36.  Mongia M, Gupta AK, Vijay A, Sadhu R. Management of stuttering using cognitive behavior therapy and mindfulness meditation. Industrial psychiatry journal. 2019; 28(1): 4-12.