Especial care: The missing link of handling in the children with cerebral palsy: A letter to the editor

Document Type : Letter to Editor


1 Assistant Professor, Department of Occupational Therapy, School of Rehabilitation Sciences, Arak University of Medical Sciences, Arak, Iran

2 Associated Professor, Pediatric Neurorehabilitation Research Center, Department of Occupational Therapy, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran

3 Associated Professor, Social Determinants of Health Research Center, Department of Occupational Therapy, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran



Especial care is a particular and unique care of children with CP which is done in the areas of occupational performance by caregivers (mostly mothers). There is a mutual lack of knowledge both the mothers and therapists to special care. This means they not only do not have the necessary knowledge about the special care, but actually they do not have experience in this field. Special care was seen as a missing link of handling, causing hardship, stress and increases the burden of care in caregivers. It seems, through educational programs for parents and therapists, with conducting training workshops and practical acquaintance of caring for children with CP can enhance information and their experience on the special care.

  1. Odding E, Roebroeck M, Stam H. The epidemiology of cerebral palsy: Incidence, impairments and risk factors. Disabil Rehabil 2006; 28(4):183-91.
  2. Rosenbaum P, Paneth N, Leviton A, Goldstein M, Bax M, Damiano D, et al. A report: The definition and classification of cerebral palsy. Developmental Medicine and Child Neurology 2007; 49(Supplement 109): 8–14.
  3. Haglund K, Kyle J, Finkelstein M. Pediatric safe patient handling. J Pediatr Nurs 2010; 25(2): 98-107.
  4. Dalvand H. Exploring the process of maternal handling the children with cerebral palsy at home [PhD thesis].Tehran: University of Social Welfare and Reabilitation; Department of Occupational Therapy. 1393
  5. Glasscock R. A phenomenological study of the experience of being a mother of a child with cerebral palsy. Pediatric Nursing 2000; 26(4):407.
  6. Griffin SD, Price VJ. Living with lifting: mothers' perceptions of lifting and back strain in childcare. Occupational Therapy International 2000; 7(1):1-20.
  7. Davis E, Shelly A, Waters E, Boyd R, Cook K, Davern M. The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers. Child: care, health and development. 2010; 36(1):63-73.
  8. Dalvand H, Rassafiani M, Hosseini SA, khankeh HR. Co-occupations: an open window to the world of caring of children with cerebral palsy. Journal of Rehabilitation 2014; 14(6): 8-17.
  9. Razavi Afzal Z, Rassafiani M, Sarfaraz Z, Malekpour M, Salehi M. A survey on caregivers' knowledge about special caring for 1-to-5 year-old children with cerebral palsy and their compliance with these practices (persian). J Res Rehabil Sci. 2013 9(4):1-11.
  10. Jalili N, Goodarzy M, Rassafiani M, Farzi M. Effectiveness of a parent training program on knowledge of mothers regarding the proper care of children with Cerebral palsy.J Res Rehabil Sci 2012; 8(3): 502-10.
  11. Rezaei M, Malekpour M, Rassafiani M. Assessment of Knowledge of Iranian Occupational Therapists of Handling of Children with Cerebral Palsy. Occupational Therapy International 2014; 21(2): 63-70.
  12. Goudarzi M, Jalili N, Rasafiyani M, Akbarfahimi N, Mardani BA. Assessment of musculo skeletal pain in the mothers of children 4- 12 years old with cerebral palsy(persian). J disabil stud. 2013; 3(1): 16-20.
  13. Ghashghaee M. Clarifying barriers and facilitators to care children with cerebral palsy during parent implementation a home-based educational special caring program. [MSc Thesis]. Tehran, Iran: The University of Social Welfare and Rehabilitation Sciences; 2012.
  14. Ghorbanpour Z, Vameghi R, Hosseini SA, Dalvand H. The effect of home adaptation, on developmental level of 60 months old children with cerebral palsy. Journal of Rehabilitation 2014; 14(6): 107-14.
  15. Ghorbanpor Z, Hosseini SA, Vamghi R, Rassafiani M, Dalvand H, Reza Soltani P. The effect of “handling training” to caregivers at home on fine motor development in 6 to 72 months old children with cerebral palsy. J Res Rehabil Sci 2012; 8(3): 466-76.